and… we have a date…

tee hee

Today was Wilhelmina’s appointments at the hospital with the Urologist and the Nephrologist…

I finally met her doctor who, as everyone has said, is so nice and so soft-spoken. He has such a calming nature that it is hard to not be at ease.

Good news! Though she does have quite a bit of scar tissue, her kidney function is at 30-35% which is great and which means that she will be having the reimplantation surgery and in the end will have two functioning kidneys.

We also have a date… the 11th of October, the day after Thanksgiving.

4 more weeks of the nephrostomy tube, about a week in the hospital and then she will be on the road to recovery. She will need a few more tests in the future to make sure there is no reflux and everything is working well, but the worst will hopefully be over soon…

 

A little update on Wilhelmina…

Wilhelmina

Wilhelmina is going on 8 weeks with her nephrostomy tube. It is not the best relationship in the least, but she is handling it quite well . She gets caught up in it, is tired of having it attached to her, the insertion site in her back gets itchy with buildup and though she is amazingly calm when I change her bandage, her skin is getting raw and bleeding in a few places because of the tape. She never pulls at it and is mostly always conscious of where it is… she even forgets that her bag is on her at times and starts looking for it… We are all ready for it to be out though, we won’t miss it in the least.

My little girl

We finished her last course of antibiotics a few days ago and she is happy to not have it anymore. 9 weeks of full antibiotics was quite enough and I am not looking forward to her having them again.

In my last update post I explained that we were waiting for the next test which was the DMSA, well, we did that on Sept 1st and it went quite well. The worst part was that it took 7 times to find a vein to inject the radioactive contrast. It was awful, but the technician in the Nuclear dept. at the Montreal Children’s is amazing. It makes things easier when the technicians and nurses show empathy instead of looking annoyed as has happened in the past…

Once the contrast was in, we needed to wait about 4 hours before doing the tests. We went out for breakfast and then went walking around the mall and just hung out while we waited.

The test was about 30 min long and Willa held my hand and watched the TV and the screen that showed her kidneys while the test was happening and it was over pretty quickly.

On some tests, you can get an idea of what the results will be but this is one that is a bit harder to decipher. Her left kidney lit up quite well which meant that it was all healthy tissue, but the right had much less healthy tissue and only showed up slightly, though that it showed up at all was a good sign…

We only had an appointment with Urology in a few weeks but have a nephrology appointment scheduled for this Wednesday, so today I called her doctor to know if I could have the results from the test by phone… If you remember from that last post. 20% or more function means that she will be getting a reimplantation surgery in which they will take out the defective section of the ureter and reimplant it into the bladder. 10% or less menas that they will be taking out the kidney altogether. Between those numbers is a grey area that will be up for discussion. So these test results are really the last piece of the puzzle to know what the next step is.

Oh, can you believe that I have never met her doctor? Seriously. Since July, during the time that she was hospitalized and every appointment we have had have been with one of the residents or with another doctor that is taking over his patients. Each time we should see him he is either in surgery, on vacation or gone for the day.. Everybody speaks so highly of him though and I have not heard one negative word about him (he is the head of the department) so I am starting to think that he is some kind of mythical creature…

So today I called to see if I could get the test results by phone. His secretary called me back saying that he was gone for the day and will be in surgery all day tomorrow so when I said that I was going to be in on Wednesday she squeezed us in before the Nephrology appointment, so hopefully we will know the results and hopefully finally know when surgery will be…

I can’t wait for this to be over… for her to have a bath, for her to be able to play and get dirty… to get back to normal…

I should have taken a nap today...

Colin's Carebear essay

I just had to share this text that Colin wrote…

The funny thing about Colin writing is that he doesn’t read yet, but he loves to write. I can’t wait to see what happens when the two click together!

To write, he sits next to me and asks how to spell most words but he often figures words out on his own also..

 

Colin's essay

Half way through, I casually told hom that his “s” was backwards and he corrected himself for the rest…

Colin wrote about Carebears

What Unschooling is not…

Colin writingIt’s September, which means that we are in the throes of the not-going-back-to-school period that seems to be the start of a new year for most. This means that along with all the schoolers, many homeschoolers are writing about the new year, talking curriculum, talking methodology, new homeschoolers are asking questions and many terms are flying around. One of those terms is of course unschooling.

I have already wrote what unschooling is to me…

 ….it is an ideology and a lifestyle in itself. It is seeing learning in a different way, a way that happens through the learner instead of the teacher.

Let me explain again, unschooling is a lifestyle. It is trusting that children will learn what they need to learn when they are ready to learn it. It is a process of letting go of arbitrary expectations that children should learn certain things at exactly/or by a certain age. It is shifting from the idea that we must teach in order for someone to learn. Unschooling is entirely philosophy in itself and it is as different from homeschooling than it is from school.

To unschool, I believe, that you have to embrace the educational philosophy (whether you embrace radical unschooling/child-led living etc. is then another issue). You have to trust that children will learn everything they need to know and that it may not be exactly what you think they need to know. It is a struggle, yes, and I freely admit that I do struggle with it also,  as I still have all of my school baggage behind me and have outside criticism that at times penetrates the barrier that I put up…  but it doesn’t change what unschooling is.

And this is where my pet peeve comes in…

What gets to me is not that people don’t know exactly what unschooling is. To be fair, it is fairy complex philosophy and far leap from most mainstream views of learning and there are so many misconceptions around it. But, it is when they don’t know what unschooling is and then still use the term to describe what they are doing or part of what they are doing. Perpetuating the myth that unschooling is basically the time that you don’t care about what your child is learning.

Here are a few quotes that I have seen in the last few weeks just to show what I mean…

“I unschool until they hit about 4 then I start incorporating a curriculum.”

or

“I unschool kindergarten then add more structure each year.”

Um… that is letting toddler be a toddler…a kid be a kid…  it is not unschooling… it’s childhood…

“We do school work in the morning and then I let the kids unschool in the afternoon.”

So basically, you are teaching your kids what you think they need to know and then letting them play/or do unstructured schoolwork in the afternoon. I would define this as homeschooling… not unschooling.

“My kids go to school and then we unschool on the weekends.”

yes… I have heard this said and um.. no!!!  again… that is letting kids just be kids and that would mean that ALL kids are being unschooled.

“We’re unschoolers…  the kids choose the subjects and then we make a curriculum around that.”

I would call that relaxed or eclectic homeschooling…and it is a great way to homeschool, but it is still parent-led and is not unschooling.

Don’t get me wrong… it is not that I really care about what kind of labels people want use, I really don’t care if people don’t unschool and it is not that unschoolers feel elitist and don’t want people in their club. It’s just that there are already varying degrees of unschooling that using the term is these contexts just cause confusion. Unschooling is more than just a method, it is instead a philosophy and it simply can’t be done part-time.

If an outsider was to hear these statements they would most likely come away with the idea that unschooling is not a way in which kids can learn the “important stuff” and that is sounds like another word for unstructured learning or play.

I mean, the people who say they are unschooling in these statements are saying they believe in “unschooling” then are contradicting themselves in the same breath by saying that they will teach what’s important. Their definition of unschooling has nothing to do with trusting that children will learn on their own, it is just pointing out that their children have unstructured learning periods.

So, when unschooling is put in that context, hearing that people choose to only unschool is basically like hearing that they are choosing for their children to not learn the important things and setting them up for future failure willingly. It sounds drastic, but it is easy to understand that if this is the way unschooling is presented, it is the way that people will understand unschooling and it is understandable that their reaction will most often be  negative.

By only hearing such statements, they would never see the possibilities that unschooling provides. They wouldn’t know that unschooled kids can and do learn “the important stuff”. They wouldn’t know that as time goes by the learning that happens is more complex and that as kids grow they will learn more, and learn quickly.

Furthermore, and most important, though unschooling is all about self-guided learning instead of what is being taught, by only hearing the phrases above, people will never know that unschooling can also involve structure, taking classes, using curriculum, having tutors, and even choosing to go to school later on..

Unschooling is just so much more than just “not doing school”.

So I ask you, if you are a unschooler, what do you think? Is it s pet peeve for you also? Do you see the same problems?

What about the others? What is your notion of unschooling?

letting go…

This summer has marked a big turning point in our family, a summer full of new gained independence. When I was young I was walking across town by 6-7 years old, going to the park, heading to the store and was almost never at home… Things have definitely changed. Not that I believe that crime is up or that kids are less safe, but I believe that people keep to themselves more, communities are more closed, kids more controlled and there is less trust all over. Maybe it is just in my community, maybe it is more widespread, but I don’t see kids walking around alone much anywhere.

Around the end of last spring, Xavier started going on his own to the park.It is not far, it is pretty direct but he had never shown any interest before and I was just waiting for him.  It was only for a few minutes and he was too nervous to stay too long but he went and came back quickly, and went a few times after that… however, when I would head to the park with the kids there were times that we would take other routes and he couldn’t get his bearings so I didn’t think that he was quite ready to explore much yet.

However, a few weeks ago he went out on his bike and stayed for a bit longer. I wasn’t worried, Xavier is quite cautious and in most of the things he does, he has trouble testing his own limits until he is completely comfortable that he can do something… (of course then there is no stopping him!)… then I get a bit more nervous…

When he came back, he told me about all the places he had gone… he explored the neighbourhood, went to the limits without crossing any of the big streets. My heart stopped for second… he had gone so far, he had explored so much. He found paths that lead between houses, and he had gotten lost and then found himself again, he saw where Simon takes the bus and then when he got home his mind was set on picking Simon up at the bus stop when he came home from work. There is a big street to cross…  it was farther than I thought I would be comfortable with…  but he explained the way perfectly and I swallowed my fears and let him go.

So he left….

and came back beaming next to Simon…

and

The next day,

Colin went with him.

heading home

Since then, Xavier and Colin, my 9-year-old and my newly 7-year-old,  have headed out on their bikes or by foot, exploring the neighbourhood, meeting kids (well, before school started again)  and on almost a daily basis they head out before supper and come back with Simon,  Walking or biking the 3 km (1.8 miles) to go pick up their father…

It is hard to let go of some fears at times, but it is the only way to let them grow… and I am so happy that they are not only finding this new independence but there are gaining the confidence that comes with it.

How far do your kids go? How old are they?

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