When I found out that Wilhelmina was likely going to have her nephrostomy tube for a few months, my mind start to think about how to make it easier for her. At first she refused carry the bag around with her attached to her waist and would crumble down to the floor screaming and kicking if I tried. So after a few days when she started to want to walk again and we headed out for a walk around the hospital one evening, I placed her bag in my purse and adjusted it for her so it would not drag too much on the ground and she was so happy. I started to think about what I would do when we got home…

The first morning we were home, Willa and I got up bright and early and I headed into the sewing room to work on a solution. In an hour I had put together a small bag tailored exactly to her size. She loved it!

After a day or two of having the strap fall down and having to adjust it often I added an elastic waist strap that is affixed with snaps. I have to say that it now work out perfectly. The waist band keeps the bag at the right hight and keeps it from slipping or moving around and she can use the shoulder strap if she want to or can use just the waist strap…

(the waist strap is under her shirt here and besides the tube coming out from her shorts, you can’t see that she has the nephrostomy)

 WillaMy little girl...showing her maple leaves

The urologist nurses and the urologist that we met with yesterday were very impressed with the setup also and because she will have it for longer than usual, it keeps things neat and tidy and there are less chances that her tube will snag on something and be pulled out, which is actually a very scary thought but a very real risk.

 

 waist band added on

 Stop taking pics! I want to go out!Heading out...